Movement Disorder Programs
- MUSC Movement Disorders Program
Foundation Center of Excellence
135 Rutledge Avenue Charleston, SC 29425
843.792.3223
https://muschealth.org/medical-services/neurosciences/movement-disorders
Outreach Coordinator: Nicole Cool
- St. Joseph’s/Candler Hospital Movement Disorders Program
11705 Mercy Blvd. Savannah, GA 31405
10 Oak Forest Road Ste B Bluffton, SC 29910
912.819.4949
Outreach Coordinator: Katy Harne 912.755.3930
- Mayo Clinic
Research Center of Excellence Lewy Body Dementia
4500 San Pablo Rd S Jacksonville, FL 32224
904.953.0856
https://www.mayoclinic.org/diseases-conditions/parkinsons-disease
- Emory University
12 Executive Park NE Atlanta, GA 30329
Phone: 404.778.3444
https://www.emoryhealthcare.org/centers-programs/parkinsons-movement-disorders
- Augusta Health University
Parkinson’s Foundation Center of Excellence
1120 15th Street Augusta, GA 30912
706.721.4581
https://www.augustahealth.org/neurology/movement
Specialists
- Coastal Neurology
1833 N Paris Ave., Port Royal, SC 29935
843.522.1420
122 Okatie Ctr. Blvd. Ste 240, Okatie, SC 29909
843.832.7925
100 West Pine St., Varnville, SC 29944
843.522.1420
Dr. Norman Bettle, MD
Dr. Paul Mazzeo, MD
Christina Rook, NP
Brian Burger, NP
- St. Joseph’s/Candler Neurology
11705 Mercey Blvd., Savannah, GA 31405
912.819.4949
10 Oak Forest Rd. Ste B., Bluffton, SC 29910
Dr. Jill Trumble, MD Movement Disorders Fellow
- MUSC Movement Disorders Program
96 Jonathan Lucas St. Rm 301, Charleston, SC 29425
843.792.3221
Dr. Vanessa Hinson, MD., Ph.D Movement Disorders Fellow
Dr. Travis Turner, Ph.D Neuropsychologist
Dr. Gonzalo Revuelta, DO DBS Program Director
Dr. Andrew Ameri, MD
*See website for full list of neurologists
- Medical Associates of the Lowcountry-Neurology
8 Hospital Center Blvd. Ste 110 Hilton Head, SC 29926
843.681.4966
Dr. Harvinder Kohli, MD
75 Baylor Dr., Ste 155, Bluffton, SC 29910
843.836.3667
Dr. Anthony Williamson, MD
Dr. William Warner, MD
- Glusman Neuropsychology Specialists LLC
Morgan Glusman Ph.D. Clinical Neuropsychologist
2015 Boundary Street | Suite 221 | Beaufort, SC 29920 (843) 640-0625 (phone) www.GlusmanNeuro.com
Dr. Glusman specializes in assessing cognitive dysfunction in adults (18 years and older) due to a variety of causes including:
- Neurodegenerative diseases (e.g., dementia)
- Movement disorders (e.g., Parkinson’s disease, essential tremor)
- Cerebrovascular conditions (e.g., transient ischemic attack, stroke)
- Autoimmune diseases (e.g., Multiple Sclerosis, myasthenia gravis, Type I diabetes)
- Neoplastic disorders (e.g., cancer)
- Genetic and developmental disorders
- Mild-severe Traumatic Brain Injury (TBI)
- Capacity evaluations
- Pre Surgical evaluations (e.g., Deep Brain Stimulation, kidney transplant, epilepsy, brain tumor)
Rehabilitative Services
- Encompass Health Rehabilitation Hospital of Bluffton
Inpatient Rehabilitation Hospital
Parkinson’s Disease Specialty Program
Speak-Out and PWR Certified therapists on staff
107 Seagrass Station Rd. Bluffton, SC 29910
843.836.8204
- Beaufort Memorial Outpatient Therapy / LifeFit Wellness Center
Outpatient Therapy Services
LSVT BIG/LOUD Certified therapists on staff
Delay the Disease Certified
990 Ribaut Rd., Beaufort, SC 29902
843.522.5635
- Wellness Institute
Outpatient Therapy Services
Specialty Parkinson’s Disease Program
100 Okatie Center Blvd N., Bluffton, SC 29910
843.547.4058
- Bluffton Mobile Physical Therapy
Outpatient Therapy Clinic and Home Therapy Services
LSVT BIG Certified therapist on staff
52 Sugar Maple St. Bluffton, SC 29910
815.816.4115
- Horizon Rehabilitation & Sports Medicine
Outpatient Therapy
LSVT BIG Certified therapists on staff
8 Hospital Center Blvd., Hilton Head, SC 29926
843.671.7342
15 Moss Creek Village, Hilton Head, SC 29926
843.836.7003
16 William Pope Dr., Ste 204 Bluffton, SC 29909
843.705.7342
75 Baylor Dr. Ste. 250, Bluffton, SC 29910
843.476.4682
- Amedisys Home Health Care
In-home Therapy and Nursing Services
LSVT BIG Certified therapists on staff
59 Sheridan Park Cir. Unit A., Bluffton, SC 29910
800.697.5235
- Synergy Homecare of the Lowcountry
In-home Professional Caregiving Services
Aware-In-Care Participating Agency
843.310.1078
Parkinson’s Disease Exercise Programs
- Dataw Island Community Center
Delay the Disease
43 Marina Dr., St. Helena Island, SC 29920
Contact: Kevin Ennis
843.838.3838
- Beaufort Memorial LifeFit Wellness Center
Delay the Disease
990 Ribaut Rd., Beaufort, SC 29902
843.522.5635
- Your Active Life Hilton Head
Delay the Disease & Power over Parkinson’s
6 Bow Cir. Ste. A6, Hilton Head Island, SC 29928
Contact: Heath Baab
843.483.6288
- Sun City Fitness Center
People With Parkinson’s Exercise Class
122 Del Webb Blvd., Bluffton, SC 29910
Contact: Gloria Moss
843.415.3294
- Bluffton RipTide Martial Arts Academy
Rock Steady Boxing
120 Palmetto Way, Bluffton, SC 29910
Contact: John Juarez
843.422.6641
- Hilton Head Island Rec Center
Pro4mance Training- Rock Steady Boxing
20 Wilborn Rd., Hilton Head Island, SC 29926
917.279.7481
- Callawassie Community Fitness Center
Pro4mance Training- Rock Steady Boxing
22 Callawassie Club Dr., Okatie, SC 29909
917.279.7481
- EarthFit Habersham
Delay the Disease & Rock Steady Boxing
101 North Market Ste 1A, Beaufort, SC 29906
Contact: Sally Pike
843.263.3591
Local Support Groups
- Parkinson’s Support Group of the Lowcountry
Beaufort Memorial LifeFit Wellness Center
990 Ribaut Rd., Beaufort, SC 29902
Meets the 4th Wednesday of every month at 1:30 pm
Contact: Rick Ostrander
214.208.7973 pdawaresc@gmail.com
Contact: Scott Rider
614.561.3113 scottprider@gmail.com
- Care Partners Support Group
Beaufort Memorial LifeFit Wellness Center
990 Ribaut Rd., Beaufort, SC 29902
Meets the 1st Monday of every month at 1:30 pm
- Bluffton Okatie Support Group
Encompass Rehab Hospital
107 Seagrass Station Bluffton, SC 29910
Meets the 4th Thursday of every month at 1:30 pm except in November it will be the third Thursday. We do not meet in December.
Contact: Mark and Jane Kaman
843.707.7520 markkaman@sc.rr.com
- Let It Rip Parkinson’s Support Group
Bluffton Library
120 Palmetto Way Bluffton, SC 29910
Meets the 4th Friday of every month at 11:30 am
Contact: Virginia Bain
770.889.8665 virginia.bain@proton.me
- Your Active Life Support Group
6 Bow Circle, Unit A6 Hilton Head, SC 29928
Meets first Friday of every month at 1:00 pm
Contact: Heath Babb
843.483.628
- Greater Charleston Parkinson’s Disease Support Group
Location: Charleston, SC
Contact: Jay Phillips at 843-482-0254 or jayphillips@homesc.com or Marilyn Phillips at 843-312-4331 or marilynphillips@homesc.com for more information
Meeting Times: Second Sunday of every month
- Parkinson’s Disease Care Partner Support Group
Location: Mount Pleasant, SC
Contact: Marilyn Phillips at 843-312-4331 or marilynphillips@icloud.com
Meeting Times: Third Thursday of every month
- The Palms of Mt. Pleasant Parkinson’s Support Group
Location: Mount Pleasant, SC
Contact: Rhonda Hammers at 843-884-6949 or rhammers@5ssl.com or Mary Rohaley at 843-990-4375 or mrohaley@housecalls-md.com
Meeting Times: Third Tuesday of the month at 2:00pm
- Summerville Parkinson’s Disease Support Group
Location: Summerville, SC
Contact: Jay Phillips at 843-482-0254 or jayphillips@homesc.com or Marilyn Phillips at 843-312-4331 or marilynphillips@homesc.com for more information
Meeting Times: First Sunday of the month at 2:30pm
– Cane Bay Family YMCA
- Summerville Parkinson’s Disease Care Partner Support Group
Location: Summerville, SC
Contact: Marilyn Phillips at 843-312-4331 or marilynphillips@icloud.com
Meeting Times: Third Wednesday of the month at 12:00pm
- Parkinson’s Disease Care Partner Support Group
Location: West Ashley, SC
Contact: Marilyn Phillips at 843-312-4331 or marilynphillips@icloud.com
Meeting Times: Third Saturday of every month
Local Parkinson’s Foundation Ambassadors
- Scott Rider
614.561.3113
- Rick Ostrander
214.208.7993
- Lindsay Moon
843.816.6988
Local Giving Opportunities
- Party For Parkinson’s
Annual Event in Habersham Marketplace
Contact: Diana Parrish
336.817.4190
- Gloria’s Parkinson’s Center
Contact: Kay Blevins
843.226.0480
www.gloriasparkinsonscenter.org
- Parkinson’s Foundation Moving Day
Annual Community Fundraising Walk
Contact: Scott Rider
614.561.3113
www.charity.gofundme.com/communitywalkbeaufort
- Beaufort Area Support Groups Fund
Community Foundation of the Lowcountry
Parkinson’s Speakers Bureau
The Following individuals are available to speak about Parkinson’s Disease and resources available locally:
614.561.3113
- Rick Ostrander
214.208.7993
- Kay Blevins
843.226.0480
- Renee Bannon, RN
843.816.6874
Renee.bannon@encompasshealth.com
- Gloria Moss
843.415.3294
Online Resources
- Parkinson’s Foundation
- Michael J. Fox Foundation
- American Parkinson’s Disease Association
- Davis Phinney Foundation
www.davisphinneyfoundation.org
- Brian Grant Foundation
- Resources for Veteran’s with Parkinson’s Disease
- Parkinson’s Support Group of the Lowcountry
Facebook Page: www.facebook.com/groups/263121124231059/
PMD List of Medications
PMD Alliance Briefings
Care Partner Support Group
Care Partner support group meets the first Monday of the month at 1:30 p.m. at Life Fit.
Contact- Linda Navorska lnavorska@outlook.com 843-368-4986 (text preferred).
MUSC Movement Disorders Program Currently Enrolling Research Studies
| Study Name | Description |
| TOPAZ | Principal Investigator: Dr. Vanessa Hinson Clinical trial to evaluate the efficacy of Zoledronic acid in the prevention of fractures in patients with Parkinson’s disease (PD) No travel to study center needed PD patients over the age of 65 |
| STEM-PD | Principal Investigator: Dr. Vanessa Hinson A study to help to determine if using an investigational neuromodulation headset device will help treat non-motor symptoms associated with Parkinson’s disease (PD). A non-invasive device is a device that stays outside of the body. It is not implanted and does not penetrate the skin. Neuromodulation means that the device stimulates activity in the brain 6 visits over 4 months with an option to enter an open-label portion PD patients between 18-85 years |
| BIA 28-6156-201 | Principal Investigator: Dr. Federico Rodriguez-Porcel Study to determine the Efficacy, Safety, and Tolerability of BIA 28-6156 in Subjects With Parkinson’s Disease With a Pathogenic Variant in the Glucocerebrosidase (GBA1) Gene Patients aged 35-80 Patients will undergo genetic testing in first part to determine if they have the GBA1 Gene, only subjects with the GBA1 gene will continue with the study 11 visits over 20 months |
| PD Gene | Principal Investigator: Dr. Gonzalo Revuelta Parkinson’s Foundation genetic registry, if you have a patient interested, send their name to the Genetic Counselor, Maysen Mesaros (mesaros@musc.edu) Saliva sample is sent in for genetic testing and is banked in the Parkinson’s Foundation Genetic Registry Genetic counseling provided |
| LUMA | Principal Investigator: Dr. Christine Cooper Study to Determine the Efficacy and Safety of BIIB122 in Participants with Parkinson’s Disease Patients aged 30-80 with clinical diagnosis of PD Never treated with PD meds or at most 30 days Subjects will have genetic testing verifying the absence of a pathogenic LRRK2 variant 20 visits over about 150 weeks |
| M21 | Principal Investigator: Dr. Christine Cooper A clinical trial to evaluate BOTOX® for the Treatment of Upper Limb Essential Tremor Patients 18-80 with upper limb Essential Tremor 12 visits over 38 weeks |
| KINECT-HD2 | Principal Investigator: Dr. Federico Rodriguez-Porcel Clinical trial to evaluate the efficacy and safety of Valbenazine for the treatment of chorea associated with Huntington’s Disease Open-label, 18 visits over a 2 year period Patients 18-75 years old with a diagnosis of motor manifest HD |
| Sage-HD | Principal Investigator: Dr. Federico Rodriguez-Porcel Study to Evaluate the Effect of SAGE-718 on Cognitive Function in Participants with Huntington’s Disease Patients 25-65 years old 9 clinic visits over 112 days |
Studies opening soon:
| Study Name | Description |
| AMX0035 and Progressive Supranuclear Palsy (PSP) | Principal Investigator: Dr. Federico Rodriguez-Porcel A Phase 3 Study of Safety and Efficacy of AMX0035 in PSP Possible or probable PSP with diagnoses at age ≥ 40 years Male or female 40 to 80 years of age 13 visits over 58 weeks |
| ONO-2808 and Multiple System Atrophy (MSA) | Principal Investigator: Gonzalo Revuelta A Phase 2 study to assess the safety, tolerability, pharmacokinetics, pharmacodynamics, and potential efficacy of multiple doses of ONO-2808 in patients with MSA Female or male patients (age 30-80) with a diagnosis of clinically-established or clinically-probable MSA 4 in person and 11 home visits over 28 weeks |
Sandra Wilson, Research Coordinator, wilsosan@musc.edu (843)792-4616 (phone), (843)792-1751 (fax)
Magdaline Volcy, Research Coordinator, volcy@musc.edu
The Beaufort Area Parkinson’s Support Group 